Bruce and Jaime just met with a specialist on Joubert syndrome which is what our little Dylan ( now 2 )has and he basically said that it will not get better and he may eventually go blind. They are devastated because of all the work they have been doing, but are being positive . They need a lot of guidance and of course prayer for healing! I appreciate all the prayer support in the last couple years on his behalf and he is a wonderful bright and funny little guy. He is blessed with a great family too who couldn’t love him more. Have a great Christmas you’re in our hearts.
Carol H.